The Digitization of Healthcare: Boundary Risks, Emotion, and Consumer Willingness to Disclose Personal Health Information
Published Online:8 Apr 2011https://doi.org/10.1287/isre.1100.0335
References
- The heat of the moment: The effect of sexual arousal on sexual decision making. J. Behav. Decision Making (2006) 19(2):87–98Crossref, Google Scholar
- The personalization privacy paradox: An empirical evaluation of information transparency and the willingness to be profiled online for personalization. MIS Quart. (2006) 30(1):13–28Crossref, Google Scholar
- A delicate balance: Behavioral health, patient privacy, and the need to know. California Healthcare Foundation: Issue Brief (2008) . http://www.acmha.org/content/events/critical/goplerud_PI_Briefing_Paper_060208.pdfGoogle Scholar
- Whose data is it anyway? Expanding consumer control over personal health information. California Healthcare Foundation: Issue Brief (2008) . http://www.oregon.gov/OHPPR/HIIAC/WebOnlyMaterials/WhoseDataIsItAnywayIB.pdf?ga=kGoogle Scholar
- If fair information principles are the answer, what was the question? An actor-network theory investigation of the modern constitution of privacy. Inform. Organ. (2005) 15(4):267–293Crossref, Google Scholar
- Primary emotions in patients with myocardial infarction. J. Advanced. Nursing (2006) 53(6):636–645Crossref, Google Scholar
- The importance of brand cues in intangible service industries: An application to investment services. J. Services Marketing (2005) 19(6):401–410Crossref, Google Scholar
- Why isn't Europe suffering a wave of security breaches? Computerworld (2006) . Accessed September 25, 2009. http://www.computerworld.com/s/article/9001176/Why_isn_t_Europe_suffering_a_wave_of_security_breachesGoogle Scholar
- Experimental Methods for Artificial Intelligence (1995) (The MIT Press, Cambridge, MA) Google Scholar
- , Lewis M., Haviland-Jones J. M. Evolutionary psychology and the emotions. Handbook of Emotions (2000) 2nd ed.(Guilford Press, New York) 91–115Google Scholar
- The current privacy environment: Implications for third-party research. J. Continuing Ed. Health Professions (2001) 21(4):203–214Crossref, Google Scholar
- How did they get my name? An exploratory investigation of consumer attitudes toward secondary information use. MIS Quart. (1993) 17(3):341–364Crossref, Google Scholar
- Information privacy concerns, procedural fairness, and impersonal trust: An empirical investigation. Organ. Sci. (1999) 10(1):104–115Link, Google Scholar
- Consumer privacy: Balancing economic and justice considerations. J. Soc. Issues (2003) 59(2):323–342Crossref, Google Scholar
- Risk for hospitalization with depression after a cancer diagnosis: A nationwide, population-based study of cancer patients in Denmark from 1973 to 2003. J. Clinical Oncology (2009) 27(9):1440–1445Crossref, Google Scholar
- Descartes' Error: Emotion, Reason, and the Human Brain (1994) (Putnam, New York) Google Scholar
- Privacy and security solutions for interoperable health information exchange. (2007) . Accessed April 21, 2008. http://www.rti.org/page.cfm?objectid=09E8D494-C491-42FC-BA13EAD1217245C0Google Scholar
- An extended privacy calculus model for e-Commerce transactions. Inform. Systems Res. (2006) 17(1):61–80Link, Google Scholar
- Emotion and the framing of risky choice. Political Behavior (2008) 30(3):297–321Crossref, Google Scholar
- Discovering Statistics Using SPSS for Windows (2000) (Sage Publications, London) Google Scholar
- Assessing the security perceptions of personal Internet users. Comput. Security (2007) 26(5):410–417Crossref, Google Scholar
- Electronic commerce: The role of familiarity and trust. Omega (2000) 28(5):1–19Google Scholar
- Mild Opioid Deprivation and Delay to Consequences Affect How Opioid-Dependent Outpatients Value An Extra Maintenance Dose of Buprenorphine (2004) (Carnegie Mellon University, Department of Social and Decision Sciences, Pittsburgh) Google Scholar
- the Personalized Health Care Workgroup of the American Health Information Community Advancing personalized health care through health information technology: An update from the american health information community's personalized health care workgroup. J. Amer. Medical Inform. Assoc. (2008) 15(4):391–396Crossref, Google Scholar
- Global Strategy Group West Virginia statewide survey. (2007) . http://www.healthyfuture.com/shared/content/News_objects/wv%20Statewide%20poll%208-08%20Topline.pdfGoogle Scholar
- Reforming the HIPAA privacy rule: Safeguarding privacy and promoting research. J. Amer. Medical Assoc. (2009) 301(13):1373–1375Crossref, Google Scholar
- , Stempel G. H., Weaver D. H., Wilhoit G. C. The controlled experiment. Mass Communication Research and Theory (2003) (Allyn and Bacon, Boston) 267–298Google Scholar
- Relation of sample size to the stability of component patterns. Psychometrika (1959) 24(2):95–112Crossref, Google Scholar
- The predictive utility of generalized expected utility theories. Econometrica (1994) 62(6):1251–1289Crossref, Google Scholar
- Many U.S. adults are satisfied with use of their personal health information. (2007) March 26Accessed April 25, 2008, http://www.harrisinteractive.com/harris_poll/index.asp?PID=743Google Scholar
- Building consumer trust online. Comm. ACM (1999) 42(4):80–85Crossref, Google Scholar
- Consumer trust in an Internet store. Inform. Tech. Management (2000) 1(1/2):45–71Crossref, Google Scholar
- Privacy practices of Internet users: Self-reports versus observed behavior. Internat. J. Human-Computer Stud. (2005) 63(1/2):203–207Crossref, Google Scholar
- Use of electronic health records in U.S. hospitals. New England J. Medicine (2009) 360(16):1628–1638Crossref, Google Scholar
- Online self-disclosure: Model for the use of Internet-based technologies in collecting sensitive health information. Internat. J. Healthcare Tech. Management (2006) 7(3/4):218–232Crossref, Google Scholar
- Opportunities for electronic health record data to support business functions in the pharmaceutical industry.—A case study from Pfizer, Inc.. J. Amer. Medical Informatics Assoc. (2008) 15(5):581–584Crossref, Google Scholar
- The risky business of lifestyle genetic testing: Protecting against harmful disclosure of genetic information. UCLA J. Law Tech. (2007) . Forthcoming. http://works.bepress.com/gabrielle_kohlmeier.1Google Scholar
- The effects of framing, reflection, probability, and payoff on risk preference in choice tasks. Organ. Behav. Human Decision Processes (1999) 78(3):204–231Crossref, Google Scholar
- Electronic health records, medical research and the tower of Babel. New England J. Medicine (2008) 358(16):1738–1741Crossref, Google Scholar
- Google to test medical-record service. The Washingon Post (2008) February 21). Accessed April 14, 2008. http://www.washingtonpost.com/wp-dyn/content/article/2008/02/21/AR2008022100004.html?hpid=sec-healthGoogle Scholar
- Hot-cold empathy gaps and medical decision making. Health Psych. (2005) 24(4):S49–S56Crossref, Google Scholar
- Risk as feelings. Psych. Bull. (2001) 127(2):267–286Crossref, Google Scholar
- From genetic privacy to open consent. Nature Rev. Genetics (2008) 9:406–411Crossref, Google Scholar
- Internet users' information privacy concerns (IUIPC): The construct, the scale, and a causal model. Inform. Systems Res. (2004) 15(4):336–355Link, Google Scholar
- Shifting selves and decision making: The effects of self-construal priming on consumer risk-taking. J. Consumer Res. (2003) 30(1):30–40Crossref, Google Scholar
- Tectonic shifts in the health information economy. New England J. Medicine (2008) 358(16):1732–1737Crossref, Google Scholar
- An integrative model of organizational trust. Acad. Management Rev. (1995) 20(3):709–734Crossref, Google Scholar
- On the evolutionary origin of prospect theory preferences. J. Politics (2008) 70(2):335–350Crossref, Google Scholar
- Developing and validating trust measures for e-Commerce: An integrative topology. Inform. Systems Res. (2002) 13(3):334-359Link, Google Scholar
- Communicating about the gift of life—Altruism and organ donation. J. Appl. Comm. Res. (2002) 30(2):163–179Crossref, Google Scholar
- Privacy experts face off over patient control, policy safeguards. Government Health IT (2009) . Accessed November 14, 2009. http://www.govhealthit.com/newsitem.aspx?nid=72111Google Scholar
- Electronic health records: A magic pill? Appl. Clinical Trials (2007) . Accessed February 1, 2007. http://www.actmagazine.com/applied-clinicaltrials/article/articleDetail.jsp?id=401622Google Scholar
- Prescription data used to assess consumers. Washington Post (2008) August 4):A01Google Scholar
- Privacy policy analysis for health information networks and regional health information organizations. Health Care Manager (2007) 26(4):331–340Crossref, Google Scholar
- Office for Civil Rights (OCR) Guidance explaining significant aspects of the privacy rule—Personal representatives. (2003) . Accessed on May 4, 2008. http://www.hhs.gov/ocr/hipaa/guidelines/personalrepresentatives.pdfGoogle Scholar
- Building effective online marketplaces with institution-based trust. Inform. Systems Res. (2004) 15(1):37–59Link, Google Scholar
- Privacy issue complicates push to link medical data. New York Times (2009) January 18):A16Google Scholar
- Strengthen health information privacy. Healthcare Financial Management (2007) 61(11):32–36Google Scholar
- Boundaries of Privacy: Dialectics of Disclosure (2002) (SUNY Press, Albany, NY) Crossref, Google Scholar
- Privacy concerns and consumer willingness to provide personal information. J. Public Policy Marketing (2000) 19(1):27–41Crossref, Google Scholar
- Common method biases in behavioral research: A critical review of the literature and recommended remedies. J. Appl. Psych. (2003) 88(5):879–903Crossref, Google Scholar
- Consumers lack critical information about value of health IT. Report says privacy, security are top concerns. Amer. Acad. Family Physicians (2009) . Accessed January 18, 2010. http://www.aafp.org/online/en/home/publications/news/news-now/practice-management/20091012consumers-health-tech.htmlGoogle Scholar
- The role of individual memory and attention processes during electronic brainstorming. MIS Quart. (2004) 28(4):621–643Crossref, Google Scholar
- All negative moods are not equal: Motivational influences of anxiety and sadness on decision making. Organ. Behav. Human Decision Processes (1999) 79(1):56–77Crossref, Google Scholar
- Enduring pain for money: Decisions based on the perception of memory of pain. J. Behav. Decision Making (1999) 12(1):1–17Crossref, Google Scholar
- Counterbalancing and other uses of repeated-measures latin-square designs: Analyses and interpretations. J. Experiment. Child Psych. (1997) 64(1):137–158Crossref, Google Scholar
- Content effects on decision making. Organ. Behav. Human Decision Processes (2001) 85(2):336–359Crossref, Google Scholar
- Tightwads and spendthrifts. J. Consumer Res. (2008) 34(6):767–782Crossref, Google Scholar
- Introduction: Understanding and dealing with organizational survey nonresponse. Organ. Res. Methods (2007) 10(2):195–209Crossref, Google Scholar
- Just what the doctor ordered: The role of information sensitivity and trust in reducing medical information privacy concern. J. Bus. Res. (2002) 57(9):1000–1011Crossref, Google Scholar
- Essentials of Behavioral Research: Methods and Data Analysis (1984) (McGraw-Hill, Boston) 141–148Google Scholar
- Patients' attitudes toward electronic health information exchange: Qualitative study. J. Medical Internet Res. (2009) 11(3). http://www.jmir.org/2009/3/e30/Crossref, Google Scholar
- Understanding Privacy (2008) (Harvard University Press, Cambridge, MA) Google Scholar
- Internet users' information privacy-protective responses: A taxonomy and a nomological model. MIS Quart. (2008) 32(3):503–529Crossref, Google Scholar
- , Clarke S., Coakes E., Hunter M. G., Wenn A. Information technology and privacy: A boundary management perspective. Socio-Technical and Human Cognition Elements of Information Systems (2003) (Information Science Publishing, London) 79–103Crossref, Google Scholar
- A field experiment comparing information-privacy values, beliefs, and attitudes across several types of organizations. J. Appl. Psych. (1983) 68(3):459–468Crossref, Google Scholar
- Cancer anxiety and perception of risk in alarmed communities. Risk Anal. (2007) 27(2):337–350Crossref, Google Scholar
- Choice, values and frames. Amer. Psych. (1984) 39(4):341–350Crossref, Google Scholar
- U.S. Department of Health and Human Services (HHS) HHS awards contracts to advance nationwide interoperable health information technology. (2005) . Accessed April 21, 2008. http://www.hhs.gov/news/press/2005pres/20051006a.htmlGoogle Scholar
- U.S. Department of Health and Human Services (HHS) Personalized healthcare: Opportunities, pathways and resources. (2007) . Accessed May 4, 2008. http://www.hhs.gov/myhealthcare/news/presonalized-healthcare-9-2007.htmlGoogle Scholar
- Social projection of transient visceral feelings. Personality Soc. Psych. Bull. (2003) 29(9):1159–1168Crossref, Google Scholar
- The Illusion of Courage: Underestimating the Impact of Fear of Embarrassment on the Self (2004) (Carnegie Mellon University, Department of Social and Decision Sciences, Pittsburgh) Google Scholar
- Work and Motivation (1964) (Wiley, New York) Google Scholar
- Framing effects: Dynamics and task domains. Organ. Behav. Human Decision Processes (1996) 68(2):145–157Crossref, Google Scholar
- Do incentives matter? An examination of online privacy concerns and willingness to provide personal and financial information. J. Marketing Comm. (2005) 11(1):21–40Crossref, Google Scholar
- Does changing behavioral intentions engender behavior change? A meta-analysis of the experimental evidence. Psych. Bull. (2006) 132(2):249–268Crossref, Google Scholar
- Effects of personal experience on self-protective behavior. Psych. Bull. (1989) 105(1):31–50Crossref, Google Scholar
- Alternatives to project-specific consent for access to personal information for health research: What is the opinion of the Canadian public? J. Amer. Medical Informatics Assoc. (2007) 14(6):527–533Crossref, Google Scholar
- Consent for use of personal information for health research: Do people with potentially stigmatizing health conditions and the general public differ in their opinions. BMC Medical Ethics (2009) 10(10). http://www.biomedcentral.com/1472-6939/10/10Google Scholar

