Privacy Protection, Personalized Medicine, and Genetic Testing
Published Online:30 Oct 2017https://doi.org/10.1287/mnsc.2017.2858
References
- (2016) The impact of privacy regulation and technology incentives: The case of health information exchanges. Management Sci. 62(4):1042–1063.Link, Google Scholar
- (2016) How gene testing forced me to reveal my private health information. Tonic (May 27), http://www.vice.com/read/how-gene-testing-forced-me-to-reveal-my-private-health-information.Google Scholar
- (2002) Concerns About Genetic Discrimination: Origins and Effects (Johns Hopkins University, Baltimore).Google Scholar
- (2003) Life insurance and breast cancer risk assessment: Adverse selection, genetic testing decisions, and discrimination. Amer. J. Medical Genetics Part A 120(3):359–364.Crossref, Google Scholar
- (2015) Building the foundation for genomics in precision medicine. Nature 526(7573):336–342.Crossref, Google Scholar
- (2016) What is a digital cookie worth? Technical report, Carnegie Mellon University, Pittsburgh.Google Scholar
- (2006) More power to the pill: The impact of contraceptive freedom on women’s life cycle labor supply. Quart. J. Econom. 121(1):289–320.Google Scholar
- (2001) Managed care and technology adoption in health care: Evidence from magnetic resonance imaging. J. Health Econom. 20(3):395–421.Crossref, Google Scholar
- (2002) Managed care, technology adoption, and health care: The adoption of neonatal intensive care. RAND J. Econom. 33(3):524–548.Crossref, Google Scholar
- (1997) The genetic revolution and the physician’s duty of confidentiality. J. Legal Medicine 18(4):401–441.Crossref, Google Scholar
- (2013) Misplaced confidences: Privacy and the control paradox. Soc. Psych. Personality Sci. 4(3):340–347.Crossref, Google Scholar
- (2006) Does organizational form affect investment decisions? J. Indust. Econom. 54(1):63–93.Crossref, Google Scholar
- (2012) The downside of genetic screening. Canadian Medical Assoc. J. 184(8):862–864.Crossref, Google Scholar
- (2016) Stanford Medicine, Google team up to harness power of data science for health care. Stanford Medicine (August 8), http://med.stanford.edu/news/all-news/2016/08/stanford-medicine-google-team-up-to-harness-power-of-data-science.html.Google Scholar
- (2009) The subjective incremental cost of informed consent and documentation in hospital care: A multicentre questionnaire survey in Japan. J. Evaluation in Clinical Practice 15(2):234–241.Crossref, Google Scholar
- (2001) Americans welcome scientific advancements with caution. VCU News (October 4), https://news.vcu.edu/article/Americans_welcome_scientific_advancements_with_caution.Google Scholar
- (2014) Gene swipe: Few DNA labs know whether chromosomes are yours or if you stole them. ABA Journal, http://www.abajournal.com/magazine/article/gene_swipe_few_dna_labs_know_whether_chromosomes_are_yours_or_if_you_stole_/on 10/18/2016.Google Scholar
- Genetics and Public Policy Center (2007) U.S. public opinion on uses of genetic information and genetic discrimination. Report, Pew Charitable Trusts, http://www.pewtrusts.org/en/research-and-analysis/reports/2007/04/24/us-public-opinion-on-uses-of-genetic-information-and-genetic-discrimination.Google Scholar
- (2011a) Privacy regulation and online advertising. Management Sci. 57(1):57–71.Link, Google Scholar
- (2012a) Privacy and innovation. Innovation Policy Econom. 12(1):65–90.Crossref, Google Scholar
- (2012b) Shifts in privacy concerns. Amer. Econom. Rev.: Papers Proc. 102(3):349–353.Crossref, Google Scholar
- (2011b) Privacy regulation and online advertising. Management Sci. 57(1):57–71.Link, Google Scholar
- (1991) Genetic discrimination: The use of genetically based diagnostic and prognostic tests by employers and insurers. Amer. J. Law Medicine 17(1–2):109–144.Google Scholar
- (2008) The genetic privacy of presidential candidates. New England J. Medicine 359(21):2192–2193.Crossref, Google Scholar
- (2001) Efficacy of bilateral prophylactic mastectomy in BRCA1 and BRCA2 gene mutation carriers. J. National Cancer Inst. 93(21):1633–1637.Crossref, Google Scholar
- (2010) Privacy as information access and illusory control: The case of the Facebook news feed privacy outcry. Electronic Commerce Res. Appl. 9(1):50–60.Crossref, Google Scholar
- (2007) Employment law. Polinsky AM, Shavell S, eds. Handbook of Law and Economics 1st ed., Vol. 2, Chap. 17 (North-Holland, Amsterdam), 1349–1386.Google Scholar
- (2001) Tamoxifen and breast cancer incidence among women with inherited mutations in BRCA1 and BRCA2: National surgical adjuvant breast and bowel project (nsabp-p1) breast cancer prevention trial. J. Amer. Medical Assoc. 286(18):2251–2256.Crossref, Google Scholar
- (2013) Estimation of treatment effects from combined data: Identification versus data security. Economics of Digitization (University of Chicago Press, Chicago).Google Scholar
- (2000) What would you do? Specialists’ perspectives on cancer genetic testing, prophylactic surgery, and insurance discrimination. J. Clinical Oncology 18(12):2484–2492.Crossref, Google Scholar
- (2009) The cost of reading privacy policies. I/S: J. Law Policy Inform. Soc. 4(3):543–568.Google Scholar
- (1992) State legislative efforts to regulate use and potential misuse of genetic information. Amer. J. Human Genetics 51(3):637–647.Google Scholar
- (1993) A survey of medical directors of life insurance companies concerning use of genetic information. Amer. J. Human Genetics 53(1):33–45.Google Scholar
- (2009) Privacy protection and technology diffusion: The case of electronic medical records. Management Sci. 55(7):1077–1093.Link, Google Scholar
- (2011a) Can health care information technology save babies? J. Political Econom. 119(2):289–324.Crossref, Google Scholar
- (2011b) Encryption and the loss of patient data. J. Policy Anal. Management 30(3):534–556.Crossref, Google Scholar
- National Partnership for Women and Families (2004) Faces of genetic discrimination: How genetic discrimination affects real people. Technical report, Coalition for Genetic Fairness, Washington, DC.Google Scholar
- National Research Council (2011) Toward precision medicine: Building a knowledge network for biomedical research and a new taxonomy of disease. Report, National Academies Press, Washington, DC.Google Scholar
- (1992) Genetic discrimination and the law. Amer. J. Human Genetics 50(3):465–475.Google Scholar
- (2013) Optimal expectations and limited medical testing: Evidence from Huntington disease. Amer. Econom. Rev. 103(2):804–830.Crossref, Google Scholar
- (2010) Genetic adverse selection: Evidence from long-term care insurance and Huntington disease. J. Public Econom. 94(11–12):1041–1050.Crossref, Google Scholar
- (1993) Insurance and genetic testing: Where are we now? Amer. J. Human Genetics 52(3):565–577.Google Scholar
- (1997) States pass laws to regulate uses of genetic testing. New York Times (October 18), http://www.nytimes.com/1997/10/18/us/states-pass-laws-to-regulate-uses-of-genetic-testing.html.Google Scholar
- (2015) Think before you click ordering a genetic test online. Scitech Lawyer 11(2):8–11.Google Scholar
- (2009) Privacy and security solutions for interoperable health information exchange: Report on state law requirements for patient permission to disclose health information. Agency for Healthcare Research and Quality, Rockville, MD.Google Scholar
- (2014) Big data analytics in healthcare: Promise and potential. Health Inform. Sci. Systems 2(1):1–10.Crossref, Google Scholar
- (2016) The impact of Angelina Jolie’s story on genetic referral and testing at an academic cancer centre in Canada. J. Genetic Counseling 25(6):1309–1316.Crossref, Google Scholar
- (2004) Genetic variants implicated in personality: A review of the more promising candidates. Amer. J. Medical Genetics Part B: Neuropsychiatric Genetics 131(1):20–32.Crossref, Google Scholar
- (2000) Adverse selection and categorical discrimination in the health insurance markets: The effects of genetic tests. J. Health Econom. 19(2):197–218.Crossref, Google Scholar
- (1994) Genetic testing: An economic and contractarian analysis. J. Health Econom. 13(1):75–91.Crossref, Google Scholar
- (2011) The effect of online privacy information on purchasing behavior: An experimental study. Inform. Systems Res. 22(2):254–268.Link, Google Scholar
- U.S. Department of Labor (1998) Genetic information and the workplace. Report, U.S. Department of Labor, Washington, DC.Google Scholar
- (2011) Surreptitious genetic testing: A new bill in Texas and the Iowa straw poll. Genomics Law Report (August 12), https://www.genomicslawreport.com/index.php/2011/08/12/surreptitious-genetic-testing-a-new-bill-in-texas-and-the-iowa-straw-poll.Google Scholar
- (2012) The burden of enforcing GINA: EEOC v. Nestlé illustrates one challenge in pursuing genetic discrimination claims. Genomics Law Report (June 20), http://www.genomicslawreport.com/index.php/2012/06/20/the-burden-of-enforcing-gina-eeoc-v-nestle-illustrates-one-challenge-in-pursuing-genetic-discrimination-claims/.Google Scholar
- (1998) Protecting genetic difference. Berkeley Tech. Law J. 13(2):653–665.Google Scholar
- (2000) Genetic testing, adverse selection, and the demand for life insurance. Amer. J. Medical Genetics 93(1):29–39.Crossref, Google Scholar
- (2005) Genetic testing for Alzheimer’s disease and its impact on insurance purchasing behavior. Health Affairs 24(2):483–490.Crossref, Google Scholar

